Study Reveals Significant Health Care Costs for Children with Autism

A recent study has highlighted the substantial financial burden faced by families with children diagnosed with autism spectrum disorder (ASD). The report indicates that families whose children are undergoing treatment for ASD spend nearly ten times more on health care compared to families with children who do not receive treatment for the disorder.

The findings stem from a comprehensive national survey conducted in collaboration with the National Center for Health Statistics and the Agency for Healthcare Research and Quality. This survey analyzed health care expenditures between 2018 and 2022 for families with children aged 3 to 17 years, revealing stark contrasts in spending patterns.

According to the data, families with a child receiving treatment for ASD incurred average health care costs of $20,122, in stark contrast to the $2,201 spent by families with children who do not receive treatment for ASD. Significantly, about 70% of total health care costs for treated children were attributed to services specifically related to ASD, with these costs showing a gradual decrease as children aged.

ASD is characterized as a neurodevelopmental disorder that impacts social interaction, behavior, and communication skills. Symptoms typically manifest before the age of three, which may include challenges in social engagement and repetitive behaviors.

The survey also revealed that ASD treatment is three times more prevalent among boys than girls. A large portion of health care expenditures for children with ASD was concentrated in particular areas, underscoring the financial pressures some families endure.

Between 2018 and 2022, outpatient visits constituted the largest segment of health care spending, totaling 51% ($10,279), followed by home health care costs at 36% ($7,168). In comparison, families of children without treated ASD spent an average of $1,101 on outpatient visits over the same period, while home health care expenses averaged only 4.6% ($102).

Out of more than 25,000 children included in the study, approximately 1.2% were reported to be in treatment for ASD. Treatment patterns also varied based on socioeconomic factors. Children with public health insurance exhibited lower total health spending compared to those with private insurance, and notable differences were observed in spending between families living above and below the poverty line.

It is essential to note that the analysis did not account for costs related to behavioral treatments provided in educational or institutional settings. Alarmingly, about one-third of children currently diagnosed with ASD are not receiving any form of treatment.

Several federal agencies are dedicated to providing assistance to families and children affected by ASD. Families are encouraged to reach out to state and local agencies for support and access to early intervention services.