Increased Cases of ME/CFS Reported Post-Pandemic

Mon 12th May, 2025

The incidence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has surged significantly since the onset of the COVID-19 pandemic, according to health experts. Current estimates indicate that approximately 600,000 individuals across Germany are currently affected by this debilitating condition, with the numbers believed to have doubled during the pandemic, as noted by leading specialists.

ME/CFS is characterized by persistent and severe fatigue that lasts for more than six months, along with symptoms such as cognitive impairments and sleep disturbances. A hallmark of the condition is the exacerbation of symptoms following physical or mental exertion. Although the illness has gained increased visibility due to its association with long-term effects of COVID-19, known as Long COVID, it was already affecting many individuals prior to the pandemic.

To address the rising concerns surrounding ME/CFS, an international conference is set to take place in Berlin on May 12, coinciding with the global ME/CFS Awareness Day. This gathering will feature around 200 healthcare professionals and researchers who will discuss advancements in treatment options and the current state of research in the field.

Leading the conference will be Carmen Scheibenbogen, Director of the Charité Fatigue Center in Berlin, and Uta Behrends, the head of the Chronic Fatigue Center for young people at the Technical University of Munich. The conference aims to tackle critical issues such as improving patient care and exploring potential therapeutic avenues.

Despite recent initiatives to improve awareness and treatment for ME/CFS and Long COVID, experts emphasize that the healthcare system remains inadequate in addressing the needs of affected individuals. Scheibenbogen highlights the significant gap in effective medications and treatment protocols for ME/CFS, alongside a lack of education about the condition in medical training programs. This has resulted in a growing demand for professional development courses focused on ME/CFS.

As the medical community continues to grapple with the implications of this chronic illness, the ongoing dialogue among experts during the upcoming conference is expected to foster greater understanding and support for those living with ME/CFS.


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